Since this is Jeff's first round of chemo we really didn't know what to expect - only what we have read. So every symptom is concerning to us. He is very weak and is suffering from horrible aching in his bones. The bone pain is from a medicine they gave him to stimulate his bone marrow to produce new white blood cells.
Our first night home was very hard. I think Jeff thought he would feel so much better just to be home and he didn't at all. In fact he felt worse because he was up too much. We got home and he couldn't settle and he turned into the biggest bear. He got a terrible headache and I thought I was going to have to get the chains and drag him off (cattle term). But he mercifully fell asleep for the next 36 hours. The headache is gone!
So we are starting our week. I called the dr's office and they said all of these symptoms are normal and we will go in for a check up on Friday. All he needs to do is rest and recover. I'm sure that's easier said than done. I don't think he is up to visitors but I'll let you know if that changes. By the end of the week his blood counts will start to drop dramatically and he won't be able to be around anyone. He will probably have to receive blood and platelets and odds are he will eventually get an infection. Although we will try SO hard to protect him. They said most patients on this type of chemo are back in the hospital pretty often. So please remind me of that if he gets sick and I start to get hysterical.
The kids are doing well. Luke is focusing on football and Gracie has cheerleading practice this week. Jake is sticking to me like glue but I have to admit I kind of like it. He and I floated in the pool together yesterday and had some great "talk" without having to talk too much. My children understand the situation and we have been upfront and honest with them about everything. We are just holding them close and thank goodness they are letting us. One funny moment: Jake pointed out that he probably shouldn't pick his nose and if he did he should wash his hands! At least he's on the ball!
We're taking it slow. We are continuing to be thankful and pray, in that order. One day at a time. I tell Jeff everyday that this is not the way he will feel forever. It will get better. It's not permanent. Or maybe I'm telling myself that. Yes, I think that's what I'm doing.
Thanks for all the love,
Jeff and Leta
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