Dr. Patel just stopped by and said Jeff is doing great and thinks he will be able to withstand 100% of the Interleuken 2 this time. What great news! His blood counts are normal and his rash is better thanks to a simple antihistimine. We are managing his pain and trying to get a handle on the new thrush infection that he has in his mouth and throat. Yuck!
One funny moment: He was having terrible pain last night in his hips and stomach. I was getting worried until we figured out he was just strangling in his underwear. I know that sounds crazy but it all made sense when they weighed him. He's up nearly 20 lbs!!! His skin is starting to get tight and shiny. They're giving him more Lasix today so I hope he doesn't retain more fluid. We still have 48 hours to go. He is scheduled to start his last dose of interleuken Friday evening but it takes 24 hours for the full dose to drip in. I hope we are home by Sunday.
Thanks for all the support and prayers. We feel like we've got a second wind and I hope it sustains us. It doesn't seem so scary today. It's bad but we know more of what to expect. I guess that's our normal now. Lesson learned: Dont let your underwear get too tight!
Love,
Jeff and Leta
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