A bump in the road

I've mentioned in previous posts that Jeff's blood counts have started dropping.  He had another blood test on Monday and they have dramatically dropped, especially his platelets.  We have been on the phone all morning with the dr's at San Antonio.  Here's what we know.  Platelet levels of 50-75 would mean Jeff would have to lower his dose of medicine but still continue.  A count of 50 or lower means that Jeff would not be able to take the medicine for at least 7 days and then only if his counts rebound.  His platelet count from Monday was 54 - right on the edge.  Of course Jeff wants to push forward and feels like he can will his body to produce more platelets.  Unfortunately science dictates this outcome and not Jeff's will.  He will have to have another blood test tomorrow before they will let him continue.  He is pissed.  You all know Jeff.  I just had to give him a big pep talk.  This fight is NOT over.  We have regrouped before and we will continue to do something even if he has to take a break from treatment.  I have to say I am slightly relieved.  Of course I want Jeff to continue treatment but this has been very tough on him.  He has experienced extreme fatigue which makes all his pain issues worse.  His insomnia has tortured him.  He even had a night last week when he slept zero!!!  I think his body needs a break.  And I know his mind does.  The other problem with low platelets is Jeff's bloody nose.  It was gone for a week but has come back with avengance.  If his platelets took another extreme drop he could have a serious problem.

So we are feeling a little low this morning.  Frustrated. Angry. Questioning everything. Does it have to be this hard? Why can't Jeff catch a break?  Is this medicine working?  Are we doing the right thing?
Goodness I need to stop that list. We are praying for higher blood counts so Jeff can continue in this trial.  We are praying the medicine is working.  I am praying that Jeff will sleep so that he won't lose his mind!! 

We should know results by Friday and that will determine treatment.  We'll keep you posted.  Thanks for being on our team.

Jeff and Leta