Jeff had a long night last night. He is running a fever and has the chills. The nurses came in a lot to take his temp and take his blankets off to cool him down. Pure torture. Somehow I actually slept pretty good. I'm sure Jeff is mad at me because of that. But it is nice to be somewhat alert today.
Jeff's blood counts are holding steady. He won't need blood today. That's good news. Gracie and Jake came to visit yesterday and brought with them a ton of energy and joy that we needed. Jeff doesn't want to make them feel uncomfortable seeing him hooked up to stuff and looking sick. But they don't see that. They love their Daddy so much - he's just see their Daddy. They crawled right into bed with him and snuggled all over him and talked about everything. It looked like a bed full of puppies. Ahhhhh! Cheered us both up. Thank you God for children!
Mom called and said Luke is also running a fever. She is trying to mother him but he is resisting. He woke up with a fever but went out to work cattle because he told his Daddy he would. One of Lukes best traits is his loyalty. We are so proud of him - most of the time, he is 16.
The doctor told us yesterday that Jeff can go home Friday afternoon when his treatment is over. That is wonderful news for us! Getting home a day early and before Christmas Eve is a true gift. So just about 30 hours to go. Yippee!
Merry Christmas,
Jeff and Leta
Thursday, December 22, 2011
Tuesday, December 20, 2011
Onward
Jeff is finally asleep after a restless night and day. He describes the feeling as having the flu. Headache, body aches and fever. His one wish is for a hot bath. But that will have to wait until we get home. Only showers here. He had some great visitors today. I noticed that he was in the conversations at first but then loses strength and gets quiet. He says he loves to sit and listen to the happy chatter around him but not have to participate. Distractions are always welcome. His brother Ron visits everyday. They are two social peas in a pod. Quiet but always listening. Loyal to the end. Brotherly love is a strong bond. Certainly stronger than cancer.
Jeff's hemoglobin dropped overnight and he will probably have to get blood this week. I'd like to offer up a humble thanks to all the people out there that donate blood. It is truly a wonderful life giving gift. Many thanks!
The blizzard missed us, thankfully. Just a little snow and cold. We are tucked into our little room wrapped up in our special quilts. Our room is decorated with little trees, a country snowman and lots of Christmas lights. Our kids are out of school and I hope they get to visit their Daddy tomorrow. All we need now is sweet dreams.
Merry Christmas,
Jeff and Leta
Jeff's hemoglobin dropped overnight and he will probably have to get blood this week. I'd like to offer up a humble thanks to all the people out there that donate blood. It is truly a wonderful life giving gift. Many thanks!
The blizzard missed us, thankfully. Just a little snow and cold. We are tucked into our little room wrapped up in our special quilts. Our room is decorated with little trees, a country snowman and lots of Christmas lights. Our kids are out of school and I hope they get to visit their Daddy tomorrow. All we need now is sweet dreams.
Merry Christmas,
Jeff and Leta
Monday, December 19, 2011
Rough start
Our morning started off great. We got a lot of rain and it was a perfectly muddy mess that would cheer up any farmer out there. We called the dr and they said everything was a go. When we got to the dr we found out that Dr Patel is out of town for 2 weeks. Seriously? And then his nurse told us that Jeff will not be taking all of the chemo. He will take the Interleuken and Interferon but not the 3 other kinds of chemo. Wish our doctor was there so we could ask some questions. The nurse explained that Jeff's blood counts are still low. His platelets finally reached 100 but his hemoglobin and white count had both dropped a little. Further treatment with those three chemo drugs could permanently damage Jeff's bone marrow. Well of course we don't want that to happen but we really wish Jeff's dr could have taken the time to discuss that with us.
But moving on we are at the hospital. We are waiting to start treatment. The two drugs Jeff is taking are the serious ones that require him to be monitored while he gets them. We have been waiting over 2 hours to start but just got word that they lost his blood sample. They're looking for it. Really? Everyone is starting to piss us off! And I even brought everyone Christmas cookies. My friend Missy told me a great quote her Dad told her. "People this time of year just need a good ole Christian ass whipping." Yes Pops they do. I just don't want to be the one who has to smack the Christmas spirit into them.
We are praying this Round - The Final Round goes easier than all the others. Maybe Jeff won't be so sick. Maybe he can enjoy Christmas with his family. Maybe this chemo is killing all the cancer. Maybe we will have the best nurses everyday all week. Maybe the blizzard won't be so bad. Maybe we'll all get through this. Maybe we'll be okay. Maybe.
Still in the Christmas spirit,
Jeff and Leta
But moving on we are at the hospital. We are waiting to start treatment. The two drugs Jeff is taking are the serious ones that require him to be monitored while he gets them. We have been waiting over 2 hours to start but just got word that they lost his blood sample. They're looking for it. Really? Everyone is starting to piss us off! And I even brought everyone Christmas cookies. My friend Missy told me a great quote her Dad told her. "People this time of year just need a good ole Christian ass whipping." Yes Pops they do. I just don't want to be the one who has to smack the Christmas spirit into them.
We are praying this Round - The Final Round goes easier than all the others. Maybe Jeff won't be so sick. Maybe he can enjoy Christmas with his family. Maybe this chemo is killing all the cancer. Maybe we will have the best nurses everyday all week. Maybe the blizzard won't be so bad. Maybe we'll all get through this. Maybe we'll be okay. Maybe.
Still in the Christmas spirit,
Jeff and Leta
Sunday, December 18, 2011
Ready or not
We are preparing for tomorrow. It will be Round 6 - The Final Round. Jeff had blood work on Thursday and when we called on Friday to get his results the Dr's office was already closed for the day. Huh! So we are guessing his blood levels were ok or they would have called. Slightly frustrating because I like a very clear cut plan. It's the kind of thing that if it doesn't work out I will probably lay on the floor and have a giant fit! I'm sure it will be okay.
Jeff had a good week. He did a lot of work. His horses are fat and fresh from lack of riding. So he tried to ride a lot. I was worried they might be too fresh and he might get bucked off but he wasn't worried. Real cowboys like a horse like that. Not me! But I'm not a cowboy - at all! But I'm thrilled that Jeff was happy to be "back in the saddle".
Jeff hit his cap on his prescription drugs. I didn't even know we had a cap. And since there is only two weeks left in the year I wasn't that worried. Wrong!!! Jeff's new miracle anti nausea patch was $1200. Yikes! But we were blessed to be able to afford it. But how come extra stuff like that always happens during the holidays? Our health insurance has been wonderful! We are so thankful to not worry about medical bills. How do people do it? How do they worry about cancer and bills? We are so blessed. We say it everyday. We hope you do too.
The weatherman says there is a blizzard approaching. Oh my! But you never know if they will be right or not. Mom and Daddy are staying with the kids so I told them to bring all their warm winter gear. I hope we don't lose our power or have our road get blown shut with snow drifts. I think they're ready for an adventure! I'm going to be one of those crazy people that goes to the store for a ton of groceries.
On an emotional level we are making it one day at a time. Anxiety can be crippling when we think of chemo ending and new scans. And then what? So we are trying to focus on the task today. We are scared to death. But we are hopeful and faithful. We are full of love for one another, our children, family and friends. I'll keep you posted during chemo. Katie and Sally are coming to decorate Jeff's hospital room all Christmasy. He has grown to love a girly touch.
Much love,
Jeff and Leta
Jeff had a good week. He did a lot of work. His horses are fat and fresh from lack of riding. So he tried to ride a lot. I was worried they might be too fresh and he might get bucked off but he wasn't worried. Real cowboys like a horse like that. Not me! But I'm not a cowboy - at all! But I'm thrilled that Jeff was happy to be "back in the saddle".
Jeff hit his cap on his prescription drugs. I didn't even know we had a cap. And since there is only two weeks left in the year I wasn't that worried. Wrong!!! Jeff's new miracle anti nausea patch was $1200. Yikes! But we were blessed to be able to afford it. But how come extra stuff like that always happens during the holidays? Our health insurance has been wonderful! We are so thankful to not worry about medical bills. How do people do it? How do they worry about cancer and bills? We are so blessed. We say it everyday. We hope you do too.
The weatherman says there is a blizzard approaching. Oh my! But you never know if they will be right or not. Mom and Daddy are staying with the kids so I told them to bring all their warm winter gear. I hope we don't lose our power or have our road get blown shut with snow drifts. I think they're ready for an adventure! I'm going to be one of those crazy people that goes to the store for a ton of groceries.
On an emotional level we are making it one day at a time. Anxiety can be crippling when we think of chemo ending and new scans. And then what? So we are trying to focus on the task today. We are scared to death. But we are hopeful and faithful. We are full of love for one another, our children, family and friends. I'll keep you posted during chemo. Katie and Sally are coming to decorate Jeff's hospital room all Christmasy. He has grown to love a girly touch.
Much love,
Jeff and Leta
Tuesday, December 13, 2011
Out and About
Jeff and I had a wonderful weekend. Jeff has decided to make the most of his extra week before Round 6 - The Final Round. Even though his counts are low, his white count has been up and he has been able to get out of the house and be around people. So on Sunday we loaded up and headed to church as a family. The Christmas Pageant was presented as the sermon. This year Jake was Joseph. I'm so so happy that Jeff was able to attend. It was a great morning. And that afternoon my Mom's side of the family gathered for our family Christmas. It was loud, crazy and absolutely wonderful. Jeff was able to stay the entire time. When we got home he was tired but felt regenerated to participate in such an annual tradition. I love my family! Repeat, I love my family!!
Today has been cloudy and misting rain - a farmer's dream! Jeff rode a horse yesterday and turned out some wheat pasture cattle. He said he had to lay down in his pick up for a rest before he drove home but he did it! He also got to watch Gracie play basketball last night. It was the first of her games that he has been able to go to this season. She played great and scored a couple of times and they won their game. He was pumped that he got to see that! Winning is always more fun.
Jeff has more blood work on Thursday. He should be on track to start chemo next Monday.
One last thing. Please keep Jeff's niece, Rachel in your prayers. She is having surgery tomorrow. Her battle with cancer rages on. She is one of the good ones! On facebook she requested prayer for 2 people she met today that are also having cancer surgery tomorrow. I can't say enough good things about her and David. I'm praying for her cure!
Feeling blessed and smiling about LaLa the dog,
Jeff and Leta
Today has been cloudy and misting rain - a farmer's dream! Jeff rode a horse yesterday and turned out some wheat pasture cattle. He said he had to lay down in his pick up for a rest before he drove home but he did it! He also got to watch Gracie play basketball last night. It was the first of her games that he has been able to go to this season. She played great and scored a couple of times and they won their game. He was pumped that he got to see that! Winning is always more fun.
Jeff has more blood work on Thursday. He should be on track to start chemo next Monday.
One last thing. Please keep Jeff's niece, Rachel in your prayers. She is having surgery tomorrow. Her battle with cancer rages on. She is one of the good ones! On facebook she requested prayer for 2 people she met today that are also having cancer surgery tomorrow. I can't say enough good things about her and David. I'm praying for her cure!
Feeling blessed and smiling about LaLa the dog,
Jeff and Leta
Friday, December 9, 2011
Delay
Jeff had his blood test today and also ended up getting a chest x ray. He has been short of breath lately and has the sensation that it hurts to breathe deeply. Now in our minds we know that those are probably chemo related side effects but our minds are a little warped and we skip right to the worse scenerio. The good news is Jeff's chest x ray was completely normal and his blood counts are up! What a relief. But when the nurse called to give us the results she said that the doctor doesn't want to start chemo on Monday as planned. His counts are up but not really high enough. It kind of bummed us out because we have been psyching up for Monday but we know it's the right thing to do. We want him to be as strong and healthy as possible as he heads into Round 6 - The Final Round!!! We hope that it doesn't ooze into Christmas but if it does we can handle it. Our number one priority is Jeff and his health. We can make it work.
The really good news is we get Jeff home for one more week. His white count is up so he can go out a little and eat out! Yippee! This is the time when he feels a little better and wants to do some things. (Like I need him to fix some things but I don't think he wants a Honey Do List) I hope he gets to spend some time outdoors with the kids. That's his favorite thing to do.
We are getting more and more into the Christmas spirit. The kids help with that part. We are feeling the love and support from everyone. Blessed, we are! Hope is starting to warm us up and we're waiting for enthusiasm to start flowing. I'm not going to send out Christmas cards this year but I'm not going to beat myself up about it. I wish we could personally let everyone know how much they mean to us. I find myself saying "I love you" more, to friends and not just family. Life is precious and we want to live it and enjoy it as much as we can. Christmas is so beautiful and can't be marred even by cancer and chemo.
So here is my Christmas card to you all. Thank you for the love that you have given to us. The greatest gift of love started in a manger and is still spreading through us all. I hope it touches you and your family during the Christmas season.
Love,
Jeff and Leta and Luke and Gracie and Jake
The really good news is we get Jeff home for one more week. His white count is up so he can go out a little and eat out! Yippee! This is the time when he feels a little better and wants to do some things. (Like I need him to fix some things but I don't think he wants a Honey Do List) I hope he gets to spend some time outdoors with the kids. That's his favorite thing to do.
We are getting more and more into the Christmas spirit. The kids help with that part. We are feeling the love and support from everyone. Blessed, we are! Hope is starting to warm us up and we're waiting for enthusiasm to start flowing. I'm not going to send out Christmas cards this year but I'm not going to beat myself up about it. I wish we could personally let everyone know how much they mean to us. I find myself saying "I love you" more, to friends and not just family. Life is precious and we want to live it and enjoy it as much as we can. Christmas is so beautiful and can't be marred even by cancer and chemo.
So here is my Christmas card to you all. Thank you for the love that you have given to us. The greatest gift of love started in a manger and is still spreading through us all. I hope it touches you and your family during the Christmas season.
Love,
Jeff and Leta and Luke and Gracie and Jake
Sunday, December 4, 2011
Destruction
I feel like I should be posting more but there is not too much to report right now. We are home and Jeff is doing a lot of "nothing" which is driving him crazy and ultimately driving me crazy. This is not our normal dynamic and we can't get into a groove. Jeff's blood counts are still very low. Which means he feels crappy and can't be around people because of the risk of infection. So no Christmas parties for us! Usually by this time he has started to rally. His blood test on Thursday showed his platelets and white counts are continuing to drop. The chemo is doing it's job and is destroying everything in it's path. Gotta love it, gotta hate it. We go back on Monday for another blood test to see if Jeff has hit bottom and is on his way back to normal. His last round of chemo is due to start December 12th. His platelets need to be well over 100 and he is hovering at 17. I'm not sure what will happen. But Jeff and I love to play the scenerio game. In fact it is probably the number reason we are driving each crazy! If one more person tells me that everything happens for a reason............ Well it is the Christmas season so I'm sure I'll have to restrain myself. We would love to finish Jeff's last round of chemo before Christmas. But I suppose there is a possibility of starting it after Christmas. You know how I love to have a plan and stick to it. Cancer and chemo must not have gotten the memo.
Our house is decorated for Christmas and we are attempting to put on a happy face. When I think about it we are really happy to have made it this far. We are so close to finishing this treatment. Please forgive our fussiness and irritability. We really are thankful. Really.
Jeff and Leta
Our house is decorated for Christmas and we are attempting to put on a happy face. When I think about it we are really happy to have made it this far. We are so close to finishing this treatment. Please forgive our fussiness and irritability. We really are thankful. Really.
Jeff and Leta
Subscribe to:
Posts (Atom)