Tuesday, May 24, 2011

No news is good news

Well....... It's already been exciting.  Yesterday Jeff met with radiology for his pre evaluation for his liver biopsy.  Our big question was if the spot hasn't grown will you attempt the biopsy.  The PA was VERY confident that they could get it whether it had grown or not - they were that good.  OK.  Jeff later went on and had his CT scans of his abdomen/chest and pelvis.  He couldn't eat last night after midnight before his biopsy today which was scheduled for noon.  At 9:45 am we got a call from the Radiologist (we don't know him).  He said the biopsy was cancelled because they couldn't get to the spot.  What????  As soon as we started askig questions he told us to call Dr. Hwu our Melanoma oncologist.  Her nurse said to come right in and Dr. Hwu would explain everything to us.  Of course we panicked!  Luckily mom was here and we went over to wait over two hours.  But the news isn't so bad.  Apparently the spots in his liver haven't really grown.  But they are in a difficult to reach spot.  They would have to go through his lung and his diaphram to "maybe" get to them.  So they will not be doing that.  The spot on his lung only grew a tiny bit - 1mm.  It is still too small to biopsy.  So they want us to come back in 6 weeks for more CT scans and they will attempt a lung biopsy.  The Dr. said there is still a chance that these spots are NOT cancer but of course they are worried that they are.  We asked if there was ANY treatment we could do now and there's not.  We have to wait to confirm what the spots are.

Jeff was very relieved!  He wasn't looking forward to the biopsy after they explained the long needle involved.  So I guess we are going home to wait and worry until the middle of July.

Here are the positive things we know:  Jeff feels good!  Nothing is spreading like wildfire.  We trust our doctors even though we don't like any of this.

So we will get to come home a day early - yipee!  We are going to live our lives as usual until we can't.  We are going to pray for a miracle and that Jeff's cancer will be cured and never come back.  We will still be a little shaky but that's ok.  I will probably continue to cry everyday and drink wine.  Jeff will continue to work too much and spend every second he can with me and the kids.  We continue to say that God is good and that we are blessed!

Love to you all, Leta

Saturday, May 21, 2011

Here We Go!

Jeff and I will be leaving tomorrow to return to MD Anderson in Houston.  His CT scans in March indicated a spot on his lung and two spots on his liver.  At the time the "spots" were too small to biopsy so they sent us home to wait. Waiting.............. We don't like it!  So hopefully we will know by the end of the week what we're looking at.  In March he also had a new tumor in the back of his nose.  They removed it and the biopsy showed it was another mucosal melanoma.  We are praying for clear scans and that the spots were nothing.

This has been such an agonizing time for us.  My Mom will be going to Houston with us this trip.  We just feel like we can't do it alone anymore.  Jeff and I are both relieved to have her taking care of us!  My Dad is staying with the kids.  It's the last week of school so I hope it's an easy job for him.

Even though this blog is about Jeff I'm sure that I will be writing most of it.  Jeff can consistantly type 3-4 words per minute!  And we all know that I'm the communicator!

Thanks for all of the support and prayers that we have received.  It has truly kept us going!  I'll keep you posted.

Leta